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Showing posts from June, 2025

About Me

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Humbly Courageous
Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.

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I Have Learned

Hello, and welcome to a new week at Humbly Courageous. I am so glad you are here.  Living my entire life disabled, life has been a learning process. As with any life, you live and learn. Some things take much longer to figure out than others.  Falling has been and always will be a part of my life. For as long as I can remember, I have been falling. It is just part of muscular dystrophy on my feet, and with foot drop on my right foot.  With that said, the falling part never gets easier, but what comes after it has changed for me over the years.  Saturday evening, I had a lovely dinner with my family to celebrate my birthday.  After we got home, I got out of the car and took a few steps. I turned to say something to one of my sons, and the next thing I knew, I was laying on the ground in excruciating pain. I landed on my right side with my upper ribs and wrist taking the brunt of the fall.  I have, in all these years, never fallen in front of my husband and b...

Dear Identity

Dear Identity, I long to know you, to get comfortable with who you, are but you are ever changing, escaping from me just as I start to sync with you.  Most of my life spent in an identity crisis, I longed to see you in focus. Instead, you were blurry, unrecognizable. Who even was I? I didn’t really know.  You escaped me like a master thief most of my life. I pleaded to get a glimpse of you for forty-four, excruciatingly long years. At each doctor’s appointment, an answer carrot recklessly dangled. The anticipation built. Each time, a new hope was born. I wondered, would I finally see you out from the shadows where you comfortably lived? Slippery, elusive I chased you with the ferocity of a raging addict trying to secure their next fix.  I needed you. I didn’t understand why you didn’t need me. I needed to know you to know me. That’s the way this life thing works. Everyone around me was figuring their lives out. Making plans for their futures.  I tried too, but I felt...