Skip to main content

Posts

Showing posts from August, 2023

About Me

My photo
Humbly Courageous
Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.

Followers

Inescapable Burnout

Hello and welcome to a new week at Humbly Courageous. I am always happy you are here! School has started back, and I got my oldest moved back into college. We are settling back into a routine, which always makes life a little easier for me. I like knowing what to expect (as much as possible). Next week, my youngest gets his driver’s license, and well, yeah I can’t even think about that without getting teary eyed. Gone will be the days when I’m needed in that way. The end of an era. As grueling as all that shuttling around can be when you are in the midst of it, you can also sense that one day when it’s over you will miss certain parts abut it. Especially the car talks, IYKYK! So, life will press on as it does and I will learn to roll with the changes because I have to. Just a little life update in our world! Burnout- as defined by Miriam Webster is “ exhaustion of physical or emotional strength or motivation usually as a result of prolonged stress or frustration”. Likely everyone readi

I Want To Grow Up

Hello and welcome to another week here at Humbly Courageous! I am so glad you stopped by. I hope to continue to be able to spread awareness of what life with a lifelong disability has been like, and still is. My hope is to continue to reach others on some level through vulnerably sharing my experiences. It isn't always easy recounting some of these experiences, but it is certainly worth it when I hear that it is helping others to not feel alone on their journey. This week, I wanted to share a little insight into what things were like as a school aged girl with a physical disability. There were some very painful and lonely times. I survived, and I do think these experiences shaped me into the strong woman I am today. We all know that tough times are oftentimes our greatest teachers in life when we look back on them. Here is a glimpse of what those hard times were like for me… First Year of School  I wanted to grow up in a world where duck duck goose wasn’t a traumatic event every ti

Coping

Hello and welcome back to another week at Humbly Courageous. I'm so glad you are here! I used to do this thing when I lived in Memphis,TN and was working for the State doing home visits with adults with intellectual disabilities and their caregivers. I was going into some of the most poverty stricken areas in the city and trying to connect these families with some much needed resources to improve their quality of life. As you can imagine, that was a difficult job for a 23 year old, or anyone really. I feel things so deeply, and it just devastated me seeing the conditions in which some of the families were living. It was eating me alive in the beginning. I couldn’t escape the sadness. I carried it home each and every day. I learned pretty quickly that a way to escape it was to emotionally numb myself to it. It was sort of hard at first, but then I was able to do it. Not completely, but to where it was realistic for me to be able to keep doing my job, as well as to keep my sanity. To