Humbly Courageous

Hello! Thanks for stopping by Humbly Courageous! This week’s post is actually over on MDA’s Quest Blog. Head over and check it out! See you back here for next week for a recap on my latest speech as National Ambassador.  https://strongly.mda.org/national-ambassador-shares-the-value-of-friendship/

Hello and welcome! I don’t know if it’s because my son is leaving for college in approximately 3weeks, or if it’s the fact that my youngest is now driving, but I feel like trying to hold onto this summer, as it quickly slips away, is what I want most! Time is such a funny thing. When you want it to go fast it goes slow, and when you want to stop time in it’s tracks, it seems to go by in the blink of an eye.  It feels like just yesterday I was meeting my husband Jamie for the first time in the science hall of our high school. That was over 30 years ago! Not too long after I started dating Jamie, he said something that I believe was the seed that was planted to start me on my journey of accepting myself, disability and all. Up until that time, I struggled quite a bit with, why me? I would continue to struggle with that for a long time, and would be lying if I said that thought never crossed my mind to this day. It’s infrequent now though, and it’s taken a lot of hard work to get to t...

Hello my fellow humbly courageous readers. Yet another week of summer has flown by. I hope you have been enjoying some of your favorite outdoor activities. We’ve checked a few fun activities off of our summer bucket list so far! In a past blog post, I talked about my experience as a waitress back when I was in college. I discussed the mental and physical challenges I had as a waitress with a disability. One of the hardest jobs I’ve ever done! Throughout my life I’ve had lots of different work experiences. For me, growing up it was never a question of whether I would work or not, just when and where. As someone living with a disability, finding and maintaining a job can be difficult for many different reasons. One of the main obstacles is that employers are often not understanding that the challenges we face with our disabilities are often unpredictable and frequent. They don’t understand that from one day to another we just don’t know how our body will function. For me, which is obviou...

Hello and welcome back! As always, I appreciate your support. If you are new here welcome, we meet here each week! This would probably be a good time to reintroduce myself for anyone new here, especially given the topic I want to cover this week. My name is Amy and I live with a lifelong disability called Bethlem Myopathy, which is a form of Muscular Dystrophy. It causes my muscles to be weak, and is slowly progressive making walking and everyday tasks increasingly difficult. So, over time, my muscles become weaker and if affects my joints as well, causing stiffness, which also worsens with time. I do my best to live life to the best of my ability. I am a wife and a mom of two teenage sons. I also love a good challenge, and in recent years have become interested in adaptive sports. I am a water lover and exercising in the water is a staple in my life. Currently, I am serving with the Muscular Dystrophy Association as their National Ambassador! I love my role which is to raise awareness...

Hello and welcome back to another blog! If you are just stumbling upon this blog, welcome! Sharing my life experiences with you as a way to raise awareness surrounding disabilities is my passion. I appreciate the time you take reading my blog posts!  When you think about a person living with muscular dystrophy, water skiing probably isn’t the first thought that enters your mind. I have to admit, I lived most of my life thinking I would never be able to snow or water ski. My eyes had not been opened up to the world of adaptive sports until just a few years ago when I was able to go snow skiing down a Colorado mountain. It was exhilarating! Turns out, I also had the opportunity last week to try water skiing. I’m hooked! I only wish I had known about the wide world of adaptive sports a long time ago. At 48 the clock is ticking, but hey I’ve still got time to seek out even more adventures before I call it quits.  Water water water! I LOVE the water. It’s a place where I can feel a...