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Showing posts from August, 2024

About Me

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Humbly Courageous
Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.

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I Can See It

Hello and welcome to a new week at Humbly Courageous. It seems that with my other writing responsibilities, the blog has taken somewhat of a backseat, but make no mistake, it is still my first writing love. I have these visions. Visions of myself in a healed body doing things that I can’t typically do. It feels like a retreat from my tired body to daydream about these things. Many times it’s just thinking about doing household chores without such effort. Sometimes they are just snapshots and other times I find myself lost in those thoughts.  I would think most have daydreams about doing things that they can’t do, but I guess I really don’t know. I’ve never had that conversation with anyone that I can remember.  One thing that I’ve noticed that I believe has slightly improved is that I don’t anger as easily when I’m not physically able to do something. Not to say that never happens, especially when I’m tired, I tend to get really frustrated easily. I’m learning to pause, take ...

I Just Wanna Stay

Hello, welcome to a new week at Humbly Courageous! I’m so glad you are here. I love going to the movies. Anyone else? It’s an instant dopamine boost. It’s dim, comfortable and I’m warm, wrapped up in a few layers and eating a favorite movie snack. What could be better?! I often find myself in that moment wishing I could stay there forever. Wouldn’t life be so much easier if we could stay in our perfect movie scene and never leave?   Or, how about when your mind wanders to a beautiful memory of the past and you are so close to that memory that you can hear it, feel it. I love that. I think to myself, I   just want to stay here forever and not face some of my realities. I admit , I’m a nostalgiaholic. My boys are so grown up. I’ve    got one a junior in college and my baby boy is a senior in high school. Just the thought of him leaving brings immediate tears to my eyes. My goodness, time is truly a thief. There is nothing within our humanly power to stop it. Most of us...

Bracing For The Worst

Hi! Welcome to a new week at humbly courageous. I’m glad you are here.  It’s no wonder that I brace myself for the worst whenever I go out in public. Every single time. It’s no wonder because I have encountered the worst many times in my life. The unsolicited comments, the stares, the whispering, the avoidance, people turning away from me like I am a monster, the laughter of young kids, those who treat me as if I am invisible. I’ve seen and heard the worst. Many times.  Sometimes, I am brave enough to look up at a stranger coming towards me, not knowing if I’ll be met with a look of pity, a look of disgust, or a warm smile. More often than not, I regret looking up. Why do I care? I don’t know, it just hurts to see and feel that there are people who think that way I guess. A few weeks ago, I was at a writer’s conference with a friend. It was her first time pushing me in my wheelchair. The conference was at a university and lunch was in the student dining hall. Normally, during ...

Day in the Life

Hello and welcome to Humbly Courageous! I want to take you through the day in the life of someone from my perspective . If you are interested in learning how things work daily for someone who is disabled, I think this may help you understand a little bit more. I personally love hearing about how others go about their lives. I find it interesting to learn how people cope with their hardships in life. That gives me a better understanding of them as a person, and I think that’s beneficial to any relationship.  6 a.m. My days always start early. I’ve never been much of a sleeper in’er. I enjoy being up early because of all the times of day, that is by far have when I have the most strength and energy.  As I open my eyes, there isn’t a day that goes by that my strength, and what I will have to do during my day on such limited strength doesn't cross my mind within a minute of opening my eyes. I can do this, right?,  I think to myself. Some days I daydream about just laying the...