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Showing posts from April, 2024

About Me

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Humbly Courageous
Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.

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The Beauty Within

Hello, welcome back to another week at humbly courageous. I’m glad you are here. You know those people you meet, or perhaps know in your life, whose beauty that lies within them overflows into their outward appearance? Their smile, their eyes, or the way they carry themselves, their ability to make those around them feel instantly comfortable. Their beauty isn’t just something you see, but something you feel too. I am always so in awe of those people. It’s not something that can be faked, it’s just natural. It’s not the makeup they wear or their clothing, it’s just…them. Perhaps they aren’t the most beautiful person on the outside according to society’s beauty standards, but there is just no denying their beautiful presence. I’m guessing we’ve all known someone like that in our lives.  As a child, people would tell me I was cute. They liked my brown eyes and my olive skin that got especially tanned in the summers, as I spent most of my waking hours outside. As far back as I can rememb

I Get To

Welcome to another week at Humbly Courageous. I’m glad you are here! Instead of saying I have to, try replacing that with I get to. Over time, watch how that changes the way you see things. Your abilities. You will start to see things differently.  That is something that has really helped me. Focusing on what I get to do instead of making excuses and not using the abilities I do have today. Wasting time and being angry about what I can’t do instead of being happy with what I get to do. Even things like household chores that I’m still able to do. Most things like laundry or cooking have to be adapted in a way that works for me, but I’m still able to do those things. I try my best just to be grateful for the ability to keep doing those things. Tomorrow’s abilities aren’t promised. I’m feeling that more and more. Between my disease and aging, I feel like everyday is a huge battle to come out ahead.  Living with Muscular Dystrophy, I am often trying to find that happy place between the fee

Why Am I Feeling This Way?

Hello and welcome to another week at Humbly Courageous. If you are new, I am so glad you stopped by. Each week, it's so exciting to see how many are reading. It's been a labor of love, so when I see that this little blog is reaching others, it makes my heart happy! The weeks leading up to my spring break trip with my family and some of our friends, I couldn’t figure out why I was feeling so hesitant. Every time I would think about going, I wasn’t feeling the excitement I used to feel leading up to a vacation to the beach. I used to count the number of sleeps before a beach vacation.  Now, as the date got closer and closer I started to panic a little more. It was bugging me and I was frustrated with myself because it’s certainly something to be grateful for.  Then, it hit me. The reason I was feeling this way. Going to the beach has become increasingly harder for me with each year that goes by, and my disease and age take away my strength. It makes me cry to think about how once