Hello! Thanks for stopping by Humbly Courageous! This week’s post is actually over on MDA’s Quest Blog. Click the link blow to check it out! See you back here next week with a regular weekly blog post! 💚 https://mdaquest.org/mda-ambassador-guest-blog-taking-care-of-our-mental-health/
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About Me
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Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.
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Hello and welcome back to another week! If you are new here, I hope you learn something new or feel a sense of camaraderie in this space. That’s what it’s all about! Last week I found myself riding around the streets of Washington, D.C. and speaking in different lawmaker’s offices regarding airline accessibility. It felt surreal to be sitting in their offices using my voice for change. It was definitely a pinch me moment! I was so honored to be there among many other amazing, seasoned advocates. We were all there to raise our voices for one thing. Change in airline accessibility. I learned so much on this trip. I had done one other Hill Day, but it was virtual. While I enjoyed that experience, there is nothing like being in person talking to another human face to face about this ultra urgent matter. People with disabilities need major change in the airline industry. As it stands, the accommodations for those with disabilities are pathetic. People are often injured, wheelchairs and assi...
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Hello and welcome back to a new week here at Humbly Courageous. For my new readers, welcome! This week I had an opportunity to do an interview for a really unique and exciting project coming out this summer. I will share more when the project is finished! One of the interview questions led me to the thought and realization that every good quality that I embody has undoubtedly emerged from the adversities in my lifetime. A few that came to mind were perseverance, empathy, patience, being a good listener, having grace for myself and others, grit, compassion and resilience to name a few! The older I get, the more clear the view becomes when I look back on my lifetime, and the mountains I have climbed, in reference to my life with my disability. All that time, all those years of wrestling with myself and the uncertainty, insecurities and heartbreak that came with being undiagnosed for 44 years, was not all for nothing. It was ALL for something. Something good. Something I never ever c...