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Showing posts from January, 2025

About Me

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Humbly Courageous
Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.

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Glimpse of heaven?

Hello and welcome to a new week at Humbly Courageous. I’m so glad you are here! Do you dream at night? Do you remember your dreams? I am a very vivid dreamer. Often, I remember my dreams when I wake in the morning. It is so fascinating to me the stories that greet me in my dreams.  There was a time in my life when I went through a period of having terrible nightmares. Strangely enough, I could never remember anything about those dreams. I would wake, wet with sweat, to my mom or dad at my bedside saying my name and telling me I was ok, asking me why I was screaming. I would feel exhausted and was often crying, but I assured them I was ok. I’m thankful I don’t remember what those dreams were that were causing me so much distress.  Sometimes, in my dreams, I am not disabled. I’m doing physical activities, such as running or just walking with ease. I hate waking up from those dreams. I always wish they could last forever. As a person of faith, I believe that someday, my body will...

Dear Fear

Hello, welcome to another week at Humbly Courageous. I am so glad you are here.  Some of you may remember my "Dear Muscular Dystrophy" blog post I wrote a while back. I was finally able to put into words the complicated feelings that living with Muscular Dystrophy cultivates. It took me so long to finally do that. Today, I am writing about my fear living with Muscular Dystrophy. Something I don't talk openly about too often, because again, it has been hard to put into words what living with that fear my entire life has been like. Here is my attempt to put that into words.  Dear Fear, You certainly are not a stranger. You have always been there, lurking, waiting to destroy me. Even as a little girl, you were there. I wasn't able to begin to process you at that point. I wasn’t even sure what I was afraid of at the time. I was just left feeling uneasy and often scared. You were far too much for my young mind to comprehend. A beast is frightening to a child, and that you ...

Letting Go

Hello and welcome to Humbly Courageous. Happy New Year! I am so glad you are here.  I took a couple weeks off from my writing gigs, and I was honestly looking forward to the time off going into it. I felt like my brain needed a break from processing so many life experiences and sharing them. Don’t get me wrong, I absolutely love what I do, but everyone needs a pause every once in a while.  The first couple of days, I was so busy preparing for the holidays I hardly noticed I wasn’t working on a writing assignment. Normally, I am writing something everyday, whether it be for my newspaper column, blog or freelance assignment. After a few days, I started to feel like something was missing. I started feeling anxious, and overwhelmed. I think I started to realize how much writing helps me to process things. It has become an outlet for me, and all of a sudden it stopped. Combining that with the holiday stress and extra physical demands, it took a toll. I came out of the holiday seaso...