Welcome back! I hope that you will, by reading my blog, see things through the eyes of someone who is physically disabled, but gets the daily done in a different sort of way! I hope you will find inspiration for you own life, like I get from hearing and learning about others who have a more difficult time physically than I do. I get life changing inspiration from others who courageously share their difficult but beautiful journeys. Others who help educate, while showing that so many things are possible, that may seem impossible. Recently, I received some life changing news. After many, many years, 44 to be exact, of shuffling through life in the dark, with an unknown disabling condition, I finally got my answer. After genetic testing of myself and my parents, along with a skin biopsy, it was determined that I have a rare form of Muscular Dystrophy called Bethlem Myopathy. I'm not sure I could make anyone, who hasn't been through this exact same experience, understand how ...
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About Me
- Humbly Courageous
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Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.