Welcome, I’m so glad you are here! I would call myself a master planner. No, I don’t mean at planning big events, outings or vacations. I mean I am a daily master planner. As a disabled person almost every moment of the day involves a plan. Even down to planning how I will get up off a certain chair or into or out of a certain car. All of it, requires thought and planning. It’s actually mind boggling to think about all the minuscule details that I have to plan throughout each day, just to get through one day! A huge part of that planning involves careful calculation of preserving precious energy too. I have to make sure that I have planned down to the smallest detail to make sure I can make it to the end of the day. There are many nights where I will sit in the living room for an extra hour or so, just to muster up enough energy to make it to bed. Kind of like an inner pep talk. When my kids were small and I was working part-time, the energy planning was SO hard. I never had...
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About Me
- Humbly Courageous
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Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.