Humbly Courageous

Hello and welcome to another week at Humbly Courageous. If you are new here, I’m glad you stopped by.  The rhythm of life. When you think about that, do you picture a constant, steady rhythm or a rhythm that is ever changing, and one where you never know what will be played next? I guess the latter is the true statement, but I do love a good steady rhythm. It seems like once one fire is out out a new one is already burning. You would think we would get used to that, but somehow it always comes as a surprise. I've always struggled fully living in the joyful moments because a part of me is always waiting for the next challenge that lies ahead. Not a great way to live, but I think the life I have lived with a disability has somewhat cultivated that. The nature of the beast. I would say I live in a state of cautious joy. Writing brings me comfort  It’s not that I haven’t had days where my weakness seems more scary than usual. I have. I think those who live with Muscular Dystrophy can c

Hello and welcome to another week at Humbly Courageous! It felt like an out of body experience when my neurologist breezed in a little over 5 years ago, and casually tossed the genetic test on the counter on that fateful day. I remember thinking, “how can he be so nonchalant about something that has caused me so much pain and strife in my life?” I quickly realized that, of course, he didn’t feel what I was feeling. No one in my life did. They couldn’t. They didn’t know what it felt like to live for so long without answers. They couldn’t comprehend the magnitude of mental exhaustion something like that has on a person. How crushing that is each day on a person. How so much of my time was occupied by pondering that lingering mystery. How with each passing year, the power of the unknown becomes more and more painful, heavier. The notion that “someday” I might have an answer was slipping out of my grasp. Except suddenly, it wasn’t. I wasn’t expecting this, but immediately I was flooded wit

Hello! Welcome to another week at Humbly Courageous. I am glad you stopped by! I think most, if not all of us, have things we look back on as we analyze our younger years that we wish we could get a “do- over” for, right? That’s just part of living and growing in age and hopefully a little wisdom along the way. Sadly there aren’t any “do-overs” but as long as we are alive, there is room for growth and change if you desire.  Living with a disability, something that I really look back on and wish I could do differently is the amount of time that I spent “editing” myself to seemingly make me more appealing to others, or to fit in when I felt I didn’t because of my disability. If you have been around, you know I have touched on this before. I think it bears repeating. Especially so for my younger readers who are also making their way through life with a disability that makes them feel different from everyone around them a lot of the time.  I have had the opportunity to form some relationsh