Skip to main content

Posts

Showing posts from September, 2024

About Me

My photo
Humbly Courageous
Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.

Followers

Listening restores dignity

Hello and welcome to another week at Humbly Courageous. I’m glad you are here! I recently traveled to Washington, D.C. to participate in my second Hill Day with The Muscular Dystrophy Association. It was an easy “yes” when asked to go for a second time, as an advocate for MDA.  I enjoyed going the first time and learning how it all works. It’s a fascinating place, and such a beautiful city! The first time I went to D.C. to advocate, we were fighting for improvements in accessibility and awareness for airline travel for disabled travelers. All too commonly, those with disabilities don’t travel because they are terrified their wheelchair (aka their legs) will be damaged and unusable when they reach their destination. Also, aircrafts need to be updated and made to be more accessible, so restrooms are accessible for all. Ultimately, the hope is wheelchair users can stay in their chair to travel, so no bodily injuries happen when transferring and to avoid damage to a mishandled wheelcha...