Skip to main content

About Me

My photo
Humbly Courageous
Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.

Followers

Teach, your Parents Well?

Hello and welcome to a new week at Humbly Courageous. I am glad you are here. 

I wonder if my children will ever grasp the truth that watching them run has healed my hurts from never being able to run? Or, all that watching them run has taught me. Not their job, but it’s what happened. God knew the next best thing would be for me to watch my children run. What a beautiful thing it is. 

When you have children, you think about all you will teach them. Sometimes you even stress about what you need to teach them in the time you have with them under your roof. It can seem overwhelming when thinking too far ahead. One thing no one talks too much about is all that your children will teach you. I have learned so much about myself through raising my two sons. I’ve learned that I do some things well, and I’ve also learned that some things that I do/did, need/needed to be let go or changed. In fact, I’m still learning from them and my boys are 17 and 21. 

One last run together under the N

I’ve learned so much watching them and others run these last several years. I’ve seen a lot of joy, pain and hardworking kids pushing to the max, day in and day out, nearly all year around. I’ve related in the way that I can, knowing the toll that daily taxing on a body takes. What it does physically as well as mentally. I know it differently, but I know. 

In many ways, I think that watching them run all these years has given me the strength to keep going with my own daily “training”. Each day is a huge feat of physicality for me, and a mental mountain to climb. Seeing their persistence and drive has been extremely inspiring to me. I doubt I’d be doing as physically well as I am today without their motivation in my life. I truly don’t think I’d have the same attitude towards my workouts, or the spirit to keep going after 50 years of it. 

I think it’s a good reminder that we can gain inspiration and motivation from others who are doing very different things than we are. We can take something positive from others and apply in an appropriate way in our own lives. 

Another thing I have learned from my boys is humility. What stands out the most isn’t their successes in running, but rather the times when it was really difficult, or they were injured and how they handled those instances. Staying humble, even in the moments of defeat. That’s not easy to do. It’s easier to be angry at the letdowns life throws our way. That anger seems warranted. What’s not easy is facing difficult times with humility. I watched each of them grow tremendously in humility throughout their years of running. Accepting that life throws everyone curveballs, and handling those in a humble way is taking the more difficult path. However, that is the path of life. The path where you will come out ahead when you make it through. Living with a disability, each day, there are defeating moments, physically and mentally. I’ve learned to try to humbly accept those moments with a little more grace for myself. 

I’ve also learned through watching them run the value of teammates. It is their teammates that helped keep them humble, and helped pick them up when they were down. I was never part of a sports team growing up, so I didn’t really understand the value of a teammate. It’s helped me to see that I too have a team of people ready to pick me up when I’m down, or there to help when I call on them. 

Mostly, through watching them run, I’ve learned how to enjoy something that is hard. I’ve learned that in the hard things, there can be joy too. I think my life in the last few years reflects this. I have made some radical changes in the way that I view my disability. I would attribute a lot of that to the lessons my boys have taught me. They have lived with humble courage and it’s been a beautiful thing to witness. As I watched my youngest son run his last high school cross country race, I felt an immense sense of pride in the way that he has handled himself through the years. I felt the same when my oldest son ran his last cross country race several years ago. I believe my children have taught me just as much, if not more, than I taught them as their mother. Sometimes the best things in life are those things we never see coming. 💚

On the course where I watched them run so many times ❤️


Comments

Popular posts from this blog

Dear Muscular Dystrophy

A letter to Muscular Dystrophy on the eve of my 49th birthday. This has been a lifelong journey…. Dear Muscular Dystrophy, At times you dazzle me, showing me the heights of human love and kindness, and at other times you take me to the deepest, darkest parts of my soul. I have silently pleaded, please just let this end. I don’t want to do this anymore. I’d like to say that was a one-time thought, but you’ve made it impossible to tell that as a truth.  I want to love you because you are a part of me, but you make it so hard at times. You feel like a best friend when I achieve feats that seem impossible due to my physical weakness, but also you feel like my worst enemy living inside of my body when you fail me, and I’m once again lying on the floor. You robbed me of big chunks of childhood joy, while I sat in silent envy of my friends, as I watched them effortlessly turn cartwheels, run and jump.  You are stuck to me like glue during the countless hours in waiting rooms, operati...

In Luke’s words

Hello, welcome back to another week at Humbly Courageous. I am glad you are here! When my oldest son asked me to proofread his college essay a few years ago, I don’t think anything could have prepared me for what I would read. My biggest fear before having children, was that my life, my disability, would affect their lives in a negative way. I know what I endure as a disabled person on a regular basis, and for years I debated if I wanted to bring children into the world with me and potentially affect their lives in a bad way. After years of discussion with my husband, I finally felt like the decision was clear. I feel God put it on my heart, that He wanted me to have children. I felt that very strongly all of a sudden. As I went on the journey that Luke took me through in this essay, I felt many different emotions. I felt sad, mad, grateful, proud and so much more. I am sad/mad that the opinions and reactions of others caused us to miss out on these precious times with Luke. That part ...

Deep Breath

Hello and welcome back, or if you are new here welcome!…..Deep breath this week, as we are diving into the emotional trauma of 47 years disabled… here we go with just a few examples. Sharing these are really hard for me, but I think it’s important to share because these things are not uncommon for those who are disabled. Some I’ve shared before, some I haven’t.  “Yeah, from the look of your profile picture you really look disabled 😂” There is SO much I could say to this. What does that mean? Am I supposed to look a certain way as a disabled woman? Please, enlighten me. I’m all ears.  Or how about the folks that left me on the floor of a bar/restaurant because they assumed I was drunk because I fell as I was exiting because the door swung the opposite of what I was expecting, so easily throwing me off balance. Had not had a drop to drink. Left me there, staring at me as if I was a zoo exhibit.  Even the manager came by and told me to move because I was letting all of the ...