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Humbly Courageous
Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.

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Dear Diary…

Hello and welcome to another week at Humbly Courageous. I’m glad you are here. Spring has sprung! We are through the darkest and coldest days, and can enjoy 6 months of a lot more daylight!


Anyone else have a diary with a lock on it in your early school days? Where you kept your deepest secrets and privately wrote about your childhood crushes? Under NO circumstances was anyone to even try to open that masterpiece under lock and key!

During a recent attic clean out my husband brought a couple of boxes down for me to go through. They contained the last shreds of my life before adulthood. In the boxes were two diaries I kept. One during my younger years, and one during college days. There was some talk about young relationships, but mostly there were pages and pages filled with my insecurities regarding my disability in both. Not much changed between the two. Insecure and silently struggling with something no one understood. In these pages I referred to my disability as my “problem”. How sad that makes me to read. No wonder I couldn’t accept myself. I was seeing myself as a very damaged person who drew a bad hand. Lost. Needing answers. 


Countless times I expressed, “why me?” My young mind wasn’t yet grasping that I could choose to focus on the good in my life. There was lots of it. I was laser focused on my “problem”. When you give something in your life that much attention, it’s almost impossible to clearly see anything else. Everything going on in my life always went back to my problem. Whether it was to blame or not, it was the blame for everything that went wrong in my life. 

These days I still try to journal everyday. Over time, those journals have slowly but surely become a place where gratitude is recorded more than hardships. Where the good outweighs the difficult. The hardships still there, but more in the background. 

My old diaries still contain many empty pages. My current journal I’m writing in is almost full, and it’s time to start a new one. I think I’ll finish the pages of my old diaries. The story that started soaked in questions, insecurities and self-doubt will instead be finished with striving for gratitude, while still being truthful with my words. True to myself, giving myself the grace and love I needed as that young girl, but so often denied myself. 
 

I’m so grateful I kept these diaries for all these years. It takes humble courage to open up old diaries. Especially when they contain such raw and tough emotions. I now realize that life really is an imperfect journey with lots of room for improvement. Always growing. 💚

For more on my story, follow me on Instagram @ashinneman. 
Check out my weekly column “Disability in the City” in The Hamilton County Reporter.


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