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Humbly Courageous
Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.

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An Unexpected Gift

Hello and welcome to another week at Humbly Courageous. I am so glad you are here. 

I want to share a story from a Christmas long ago. A story about an unwanted gift. A gift that changed my life. An unflattering portrayal of myself. 

Seems so small now!

Christmas morning, maybe 1979, 1980 I don't remember for sure. I couldn't wait to wake up to the gift I had asked for. I just knew my roller skates would be waiting for me under the tree. The Rainbow Roller Rink was probably the most popular place for kids to hang out. The reality was, I stunk at roller skating. Roller skating and a muscle disease are not a great partnership. All of my friends were there though, so naturally that's where I wanted to be too. Maybe, my very own pair of Strawberry Shortcake skates would be the ticket to making me a skillful roller skater. Finally allowing me to let go of the railing and join the others I thought.

The Rainbow Roller Rink

However, that is not the way things played out at all. When my parents revealed to me my new shiny bicycle named "The Cactus Rose" I lost it. Pouting, crying, complete devastation. I was an ungrateful brat. I regret it, but it's the truth. Downright awful. Somewhere out there is a picture of me perched on my bike that morning, with an ugly, pouting face. To this day, my family still teases me about it. 

I was persistent. I wanted those skates. I just knew they were going to change my life. Had to have them. My parents finally took me to the store to purchase the skates with money that I had received for Christmas. It wasn't that the skates were expensive. They weren't. Far less expensive than a bicycle. My parents knew those skates weren't going to change anything for me and my roller skating dreams. I'm sure they were trying to protect me from the inevitable emotional collapse. At the store, they had the exact skates I wanted. Maybe a half size too small, I squeezed my foot into one and announced they were perfect (honestly they hurt, but I wasn't about to leave there without them). I couldn't wait to try them out at the roller rink and effortlessly skate amongst my friends.

The Coveted Roller Skate 

My first outing with those skates was soul crushing. They hadn't changed anything for me. There were the same as the skates I had rented all the times before. I still stunk at skating. I couldn't stay on my feet. No matter how much I wanted it, I didn't have the muscle power and balance that my friends did. My dreams were crushed, and I am not sure if I ever put those skates on again. 

What I did do, is develop a love for that darn Cactus Rose. Arguably the first love of my life was that bike. It, more than anything else, allowed me to feel freedom from my disability. What it did for me, is truly priceless. I rode for hours upon end on that bike. Of course, I still own it. I could never let it go. Who even knows where those skates are?! Of course, my parents knew that would be the gift that kept on giving. I cherish the memories of those days when my body was far more physically able than it is now. I like to go back to those days in my mind and just sit in those thoughts. They comfort me. 

Looking back on those embarrassing and not flattering moments in our lives takes humble courage. Admitting our regrets, and seeing the beauty of the unexpected gifts we have received in our lives, sometimes not so graciously. Those are the best gifts of all. 💚

Comments

  1. You’re welcome 😉

    ReplyDelete
  2. It truly is a blessing to read your stories and see the power of God in your life. I have been blessed to know Jamie personally and am luck to have had is guidance over the past few years. Stay strong Amy!

    ReplyDelete

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