Skip to main content

About Me

My photo
Humbly Courageous
Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.

Followers

Just a Small Town Girl

Hello and welcome! A friend of mine messaged me a couple of months ago and asked me if I would speak at the Wall of Change ceremony at his work. He works in the probation office in the town where I live. The individuals receiving the Wall of Change awards have made significant improvement and progress to live on a better and more impactful path than they were on. He said he thought it would be great to talk about how I’ve overcome obstacles in my life, and how I’ve kept going, even when it’s been tough to do so. I told him that I would be glad to come and speak. 

I had been so busy leading up to this speech, and in the back of my mind I thought I’d just use one of my other speeches I’ve written. I figured I had something in my library of speeches that could work. However, when I started to prepare for it, and looked through my speeches, I felt like none of them were the right fit. I also thought to myself, I’m not sure I’m the right fit for this speech. I kept trying to figure out why he had chosen me to speak. I hadn’t led the life they had, my difficulties were very different. I was struggling to see how they would be able to gain anything motivating from what I would say. I also knew it would be a more intimate environment than I have been speaking in. In my opinion, it’s much easier to speak to a huge crowd than to speak to a smaller crowd where people are closer. However, our friend Paul felt confident in me, so I thought, ok let’s do this! 

I wrote the speech a few days before, and while ultimately I was still telling my story that I typically share, there were pieces of it I added in this time that felt right to do so that I don’t often share. Although I practiced it, I still felt a little bit of anticipation of, what if they don’t connect with my message? I knew it was a very important night to them, and Paul had told me the last speaker at this event had been a fighter pilot who was a Blue Angel. Hard act to follow! 

I arrived at the event and got settled in. There was a picture and a bio of each of the award recipients. I read the first one and felt more at ease, then read each of the others. I was blown away at the connection I felt to each of their stories. There was a piece in each of them that resonated with me. I got emotional thinking that this was not a mistake that I was there speaking, but just another carefully orchestrated piece of my path. 

I delivered my speech in the intimate setting, and felt nothing but compassion and acceptance. I had to fight back the tears as I spoke and looked at these men in the audience with their proud family members by their sides. Among others in the crowd were a few of our county Judges, a wonderful man from the Wheeler Mission that had been a pivotal part of one the gentleman’s lives and many other employees who had been a part of their successes. 

There I was, just a small town girl in her hometown, willing to share my story, humbly courageously. Most of us are “small potatoes” I suppose in the eyes of many. That doesn’t matter though. Most people want to connect with others who maybe haven’t necessarily walked their same path, but can connect in some way to the difficulties in life, and feeling victorious when we reach the other side of those difficulties. It was a special evening that touched my heart. Seeing the humble pride felt by these gentlemen will forever be in my heart. 💚

My beautiful town square 💚


Comments

Popular posts from this blog

Dear Muscular Dystrophy

A letter to Muscular Dystrophy on the eve of my 49th birthday. This has been a lifelong journey…. Dear Muscular Dystrophy, At times you dazzle me, showing me the heights of human love and kindness, and at other times you take me to the deepest, darkest parts of my soul. I have silently pleaded, please just let this end. I don’t want to do this anymore. I’d like to say that was a one-time thought, but you’ve made it impossible to tell that as a truth.  I want to love you because you are a part of me, but you make it so hard at times. You feel like a best friend when I achieve feats that seem impossible due to my physical weakness, but also you feel like my worst enemy living inside of my body when you fail me, and I’m once again lying on the floor. You robbed me of big chunks of childhood joy, while I sat in silent envy of my friends, as I watched them effortlessly turn cartwheels, run and jump.  You are stuck to me like glue during the countless hours in waiting rooms, operati...

In Luke’s words

Hello, welcome back to another week at Humbly Courageous. I am glad you are here! When my oldest son asked me to proofread his college essay a few years ago, I don’t think anything could have prepared me for what I would read. My biggest fear before having children, was that my life, my disability, would affect their lives in a negative way. I know what I endure as a disabled person on a regular basis, and for years I debated if I wanted to bring children into the world with me and potentially affect their lives in a bad way. After years of discussion with my husband, I finally felt like the decision was clear. I feel God put it on my heart, that He wanted me to have children. I felt that very strongly all of a sudden. As I went on the journey that Luke took me through in this essay, I felt many different emotions. I felt sad, mad, grateful, proud and so much more. I am sad/mad that the opinions and reactions of others caused us to miss out on these precious times with Luke. That part ...

Deep Breath

Hello and welcome back, or if you are new here welcome!…..Deep breath this week, as we are diving into the emotional trauma of 47 years disabled… here we go with just a few examples. Sharing these are really hard for me, but I think it’s important to share because these things are not uncommon for those who are disabled. Some I’ve shared before, some I haven’t.  “Yeah, from the look of your profile picture you really look disabled 😂” There is SO much I could say to this. What does that mean? Am I supposed to look a certain way as a disabled woman? Please, enlighten me. I’m all ears.  Or how about the folks that left me on the floor of a bar/restaurant because they assumed I was drunk because I fell as I was exiting because the door swung the opposite of what I was expecting, so easily throwing me off balance. Had not had a drop to drink. Left me there, staring at me as if I was a zoo exhibit.  Even the manager came by and told me to move because I was letting all of the ...