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Humbly Courageous
Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.

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100!! 🥂

Welcome to the 100th blog post for Humbly Courageous! Wow! A lot of heart went into these blog posts. There is very little I have left out and not shared. I mean a girl has to have a few secrets, right?! But seriously, when I started writing, being anything less than completely vulnerable didn’t feel honest, and I knew if I really wanted to reach people, I had to tell the good, the bad and the ugly. That’s what I set out to do, and now this week finds me writing my 100th blog post. To say I have been blessed by being vulnerable is an understatement. Sometimes, I look at these comments and feel like I’m dreaming. It’s what I always wanted. To feel that sense of connection, and like I am helping somebody in this world who feels alone like I once did. 


The 44 years of waiting, was it a waste of time or a lesson in living well? My faith tells me it was, of course, part of my life’s plan. Still, I sometimes wrestle with the thought of all the wasted time when I was angry, and I didn’t appreciate the goodness in my life enough. I was bitter because I was disabled and didn’t have a diagnosis. Constantly swimming upstream. I lived life against myself, doing my best to avoid my reality. Or what even was my reality? I didn’t even know. I could look at it as so much wasted time. At times, I feel like I’m desperately trying to make up for all those years. There’s not enough hours in a day. The truth is I can’t go back. I have to accept that as a lesson, and it’s what got me where I am today, along with a lot of hard work. Without it, I never could have experienced what I’m going to share with you today. These are the words of people I’ve never met face to face. I hope to, but I haven’t yet. Their words help me as much as they say my blog posts help them. This is what they have had to say to me….








I wish I could share all of the amazing feedback I have gotten. It has truly changed my life in the best way possible to know, that I, one small voice, have made a difference in someone’s life. Putting yourself out there for all to judge takes humble courage. You don’t ever know if you will be met with resistance or compassion. If you want to share your story to impact someone’s life, then you have to go forward and not worry about the resistance, but focus on the ONE person who’s life you can make a difference in. That’s what Humbly Courageous is all about. Here’s to the next 100 posts! So grateful to have you on this journey with me. THANK YOU! 💚

P.S. This past Tuesday I celebrated the 4th birthday of my diagnosis day. It’s truly a celebration, and a great day of reflection for me. I’m just so grateful to have this day to celebrate! 








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