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Humbly Courageous
Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.

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Heartbreak…path to peace

Hello and welcome back to another blog! Thanks for being here. I recently came across something I wrote down that I heard a speaker say last year at my church.  He said, “when we find the intersection of what breaks God’s heart, and what breaks our heart, we then find God’s mission for us. 

Muscular dystrophy breaks my heart. At any given point in a day, I could probably just stop and sob if I think about all MD has robbed me of, and has for 47 years. My whole life. It tries its best to hold me back daily. My mind longs to do SO much that I cannot accomplish in my weakened body. My drive is strong, my body is not. 

I’ve really come to love and respect this scooter!

It breaks my heart, it does. It breaks my heart to see all of my fellow MD warriors fighting battles way bigger than mine. I think it breaks God’s heart too. So, therein lies my mission. My mission is Muscular Dystrophy. My mission is making the best of what I have, and helping others along the way that need to get to that place too. The place of acceptance for things they cannot currently change. The place I so desperately needed to get to, and it took me nearly 44 years to do so. I want to help others get there sooner. To be free. 

I think it goes without saying that’s not an easy place to get to. There is so much anger at times. So much frustration on a daily basis. Those are really hard things to “overcome” and get to the other side of. As hard as it is, it’s key to living well with a lifelong disability. It’s miserable to live angry and bitter everyday. Once you can free yourself of that mindset, everything changes.

I’m now free to focus on my mission. It requires focus, and daily diligence. Sometimes I still find myself drifting to the anger and bitterness, but not nearly as much. I’ve learned I can’t grow there, and can’t help others from that mindset. Living out our mission requires humble courage and A LOT of never ending grit and hard work. It’s totally worth it, and the reward from it is indescribable peace. I hope you too can lean into your mission, and experience the true joy it brings. šŸ’ššŸ’š

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