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Humbly Courageous
Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.

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The Deep Weep

Hello and welcome back! Do you ever allow yourself to deeply weep? It could be the result of something good or bad that causes the deep weep, or it could just be an overwhelming sense of gratitude when you reflect on how far God has carried you, and all you have been through in your life. I don’t often deeply weep because it feels out of control to me, and I like to be in control to a fault, no doubt. However, sometimes strong emotions just take over and you should let them pass through. 


This past weekend most definitely will go down in my memories as one of the the best moments of my life. My dear sister, along with the help of my husband and my cousin arranged a glorious surprise for this year’s muscle walk for MDA! It really was a dream come true just seeing all who showed up to support me. I did cry when they surprised me, but those were baby happy tears! It wasn’t until a few days later when I was looking back on the pictures when the deep weep hit me. All those people who were there love me dearly and want to help me. They want me to get better, and get stronger too! I already knew that, but this reminder just sent me over the top. It was in the flesh proof seeing it with my own eyes, everyone all together. The smiles, the laughs, friends and family! My KIDS!! Seeing the picture of them waking together by me. My heart! 

The surprises weren’t over yet though. As we were headed back to the shelter on the last leg of our walk I saw Jamie, Jack and my good friend Nyheim Hines waking towards me. I was honored that he took the time to join us! He’s in the middle of Colts Training Camp, and a very busy guy. It was so fantastic he could join a muscle walk because he really wanted to be involved for his mom and uncle, but was away from them at the time. I know it did his heart good to be able to connect with a muscle walk team that day. We all enjoyed having him as part of our team. So glad we are joined together in this fight! 

So, I would encourage you to humbly courageously feel the deep weep whenever it comes along. Let those emotions run through you no matter what they are. I think everyone I know is struggling with something right now. It’s just a hard time in many ways for so many. The deep weep can be happy or sad, just let it be. 💚💚




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