Skip to main content

Followers

A Wavering Faith

Hello and welcome to another week at Humbly Courageous! Faith. I'm not sure what that means to you. To me it means a journey. A journey that has had it ups and downs. I have lived without God as the center of my life, and I've lived with Him as the center of my life. I grew up going to church with my mom and my sister. I never had a super deep connection, but I believed God was real, and He was important to me. As I got older though, to me God became a place to dump my anger surrounding my disability. I just didn't understand how I could, not only be disabled, but also why I had to deal with not having a diagnosis. I don't think I ever stopped believing in God, but I definitely stopped thinking that He was going to help me out of the black hole I was sliding more and more into with each passing year. 

I would hear about people who where thankful in all circumstances. They thanked God for their struggles, and their trials in life. I usually pray throughout the day on and off when I feel like I need to pray for someone, but at night is more of a focused prayer time when I pray for the many who I know are struggling. I would try to make myself thank God for my disability, and the struggles it brings, but I just couldn't. I wasn't able to give up my need to understand why things were the way they were physically. It was a block that I couldn't get around. I felt guilty for not being more thankful, but I just wasn't. I was angry and frustrated. 


There were a few things that happened on my faith journey that started to turn things around. I attended a weekend retreat that began my faith transformation. From there on out, I just continued to grow in my trust that God was going to take all the struggles, pain and adversity and turn them into something good. I started doing something at my church that is called miracle prayer time where you can go up after the service, and someone will pray with you for a miracle to occur in whatever area you would like to be prayed for. My husband and I would go up and we would ask for prayer that I could find a diagnosis for my muscle disease that I had been searching for my whole life. We did that for months. I got my miracle when I was 44 years old and had genetic testing done that lead to my Muscular Dystrophy diagnosis. My trust was building. 


The next step that I think is what really turned things around was regular gratitude. I started simple. Consistently thanking God for my family, our health, our home, food. The things we tend to take for granted. The more I did that the more I felt pulled to thank God for my disability. Finally, I was able to do that. There was no longer a block. At first it felt a little strange, but the longer I did it the more authentic it became. I started asking Him to lead me where he wanted me to be. To help those who needed to be reached. To not hold back sharing what I felt called to share because of what someone may think or say about me. His plan for my life. My acceptance of my disability with gratitude affects more than just myself. It has a ripple effect that can reach far and wide. When you align yourself with God's plan for your life, doors that you've been pounding on for years just seem to open. You feel a true joy in your heart.


I know not everyone's beliefs align with mine, but I wanted to share what turned things around for me. I once was a prisoner to my disability. Mentally and physically. I now consider it as a “gift” that I can use to help others. Walking humbly courageous into my faith has been one of the hardest things I've ever done, but also the most rewarding thing I've ever done. I will close by sharing something I recently read in my daily devotional called Dear Jesus, by Sarah Young. It says "your patient endurance of suffering can strengthen and encourage my people on earth." Think about that. A lot of the people who inspire or encourage you are probably those who patiently endure something difficult. It gives hope. 💚

Proverbs 3:5 



Comments

Popular posts from this blog

Dear Muscular Dystrophy

A letter to Muscular Dystrophy on the eve of my 49th birthday. This has been a lifelong journey…. Dear Muscular Dystrophy, At times you dazzle me, showing me the heights of human love and kindness, and at other times you take me to the deepest, darkest parts of my soul. I have silently pleaded, please just let this end. I don’t want to do this anymore. I’d like to say that was a one-time thought, but you’ve made it impossible to tell that as a truth.  I want to love you because you are a part of me, but you make it so hard at times. You feel like a best friend when I achieve feats that seem impossible due to my physical weakness, but also you feel like my worst enemy living inside of my body when you fail me, and I’m once again lying on the floor. You robbed me of big chunks of childhood joy, while I sat in silent envy of my friends, as I watched them effortlessly turn cartwheels, run and jump.  You are stuck to me like glue during the countless hours in waiting rooms, operati...

Recovery Week 1, SVF Stem Cell Treatment #2

Welcome back! Well, I survived week one post double SVF stem cell procedure, and also got word that the half of my cells I am banking arrived safely at the cell bank. That was a relief! One thing is for sure, there was a definite difference in the single procedure recovery vs. the double procedure recovery. There has been a lot more pain this time. I am still very sore from the procedure. The bruising is getting better, but definitely still there. Also, the area is still swollen and very tender to touch. Each day I have just taken it day by day. I have had some good days, combined with some really painful days. The pain is from the actual procedure, but also I have had some achiness all over that has been pretty persistent and miserable this time, as well as feeling very fatigued. However, I know I am only about a week post procedure, and all of this is to be expected. Allowing your body to heal is important to the process! The first couple of days, I just had a hard time finding a com...

Community Chat-Sarah

Hello and welcome to a new week at Humbly Courageous!  This week I am so excited to share a new community chat with you.  Sarah and I have something very unique in common. We both live with the rare neuromuscular disease, Bethlem Myopathy. It has been incredible to connect with Sarah over the last few years, and witness her journey to motherhood. Like me, Sarah has spent much of her life searching for answers and trying to make sense of this disease.  We have many similarities, and “meeting” someone who truly understands just how difficult this journey can be, is truly life altering. We also both recognize how we can find beauty in the hard and amongst the pain. Our faith is strong, and we both agree that we wouldn’t be here today without our relationship with God. He is our strength on our weakest days. I was so honored to be someone she could come to with questions regarding her pregnancy and becoming a mother. That is something I longed for when I was entering into mot...