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Humbly Courageous
Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.

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Welcome!

Welcome to Humbly Courageous! To start, I guess I should share a little about me and what makes me who I am, and what has driven me to want to start this blog.

I am 44 years old, and I was born with a neuromuscular disease that is still not identified, although recently some exciting progress has been made through genetic testing in the direction of a diagnosis. I am a married mother of two active teen boys who keep me going. I struggle with weak muscles all over my body that make it hard to get around and do everyday normal tasks. However, most days, I try not to let that stop me and I keep on keeping on in my own unique style. I try to add a dash of humor to my situation which can sometimes ease the sting of my reality. The reality is that there are many things in life that I would like to do and accomplish, but am physically not able to do. My hope is to shine a light on the abilities that I do have, and the way I go about getting things done as a disabled mother and wife of a very busy household.

 I hope you will join me on my journey of bringing awareness to the everyday life of a physically disabled person, just one of many. I feel that we can best learn from others whose situations are more difficult than our own. I feel that brings awareness to the many things that we are capable of!

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  1. What can I do to help you get the word out about this blog? I love it!

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