Hello, welcome to Humbly Courageous. I am so glad you are here. I hope my blog brings a sense of understanding what living a life with a disability can be like, or helps you to feel seen as a human who has value. This is just one perspective, but I believe all our perspectives hold value and have the capability to help others in unique ways. As a child, I often had this sinking feeling. It felt like an emptiness deep inside my body. It was a powerful feeling, and I felt very unsettled by it. It was a sad feeling, and I never knew where it came from. I kept this to myself. Several years later, I was courageous enough to tell my best friend about it. She quickly responded, “I get that too!” I could tell that she was as relieved as I was to find someone to commiserate with. We described in detail what this felt like to each other. We were both happy that we found someone who understood. Neither of us had ever told anyone else about this. As the years wen...
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About Me
- Humbly Courageous
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Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.