Skip to main content

Posts

Showing posts from August, 2025

About Me

My photo
Humbly Courageous
Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.

Followers

Dear Disabled Motherhood

Dear Disabled Motherhood, As a child, I never dreamed being a mother could be my reality. As I got older, I boldly proclaimed I did not want kids every chance I got.  I was suiting up in an armor of protection, thinking if I told myself that long enough, I would believe it.  My childhood years spent playing with my dolls pretending to be a mother, but not really believing that would ever by my reality. Now I know, that was a lie I told myself to soften the blow. I did want kids. I just did not think my body was capable. God placed a glimmer of hope in my heart, telling me I could be a mom. We trusted that. To this day, I still spend many moments in awe marveling at the ease in which I was able to become pregnant, twice. Nothing ever came easy. I expected pregnancy would not either. What a true blessing that took me by surprise. What did not come easy was finding information on becoming a disabled mom. The books that were out there had so many things in them that did not apply ...

Community Chat-Sarah

Hello and welcome to a new week at Humbly Courageous!  This week I am so excited to share a new community chat with you.  Sarah and I have something very unique in common. We both live with the rare neuromuscular disease, Bethlem Myopathy. It has been incredible to connect with Sarah over the last few years, and witness her journey to motherhood. Like me, Sarah has spent much of her life searching for answers and trying to make sense of this disease.  We have many similarities, and “meeting” someone who truly understands just how difficult this journey can be, is truly life altering. We also both recognize how we can find beauty in the hard and amongst the pain. Our faith is strong, and we both agree that we wouldn’t be here today without our relationship with God. He is our strength on our weakest days. I was so honored to be someone she could come to with questions regarding her pregnancy and becoming a mother. That is something I longed for when I was entering into mot...