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Showing posts from May, 2025

About Me

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Humbly Courageous
Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.

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The Enemy Within

Hello and welcome to a new week at Humbly Courageous. I am so glad you are here.  Every day when I wake up, it’s like I am waking up to the enemy within. I instantly know, I will again be in for a day of fighting for my physical well being and safety. This is how it’s been for my entire existence. Some days the thought is, ok, let’s do this! Other days its, here we go again, this is going to be a long day. Perhaps most of us feel that way for one reason or another, depending on our life circumstances. It’s not a feeling reserved for the disabled, that is just my perspective as ONE disabled person.  Sometimes, it feels as though it’s a stranger living inside my body wreaking havoc. After 50 years, it’s definitely worn out its welcome here. But, as we all know, some things are simply out of our control. Other days, I can settle in, and look for what my disability is teaching me in this life. I promise, there are some really valuable life lessons living in a disabled body. Truly...